ABOUT US

Mobility in Dystrophy (MIND) Trust is a nascent fellowship of the patients of Muscular Dystrophy (MD) and Spinal Muscular Atrophy (SMA) in Kerala since May 1, 2017. MD and SMA are progressive genetic disorders ie., though the diseases may be localized to one part of the body in the beginning, it gradually spreads to other parts, leading finally to a complete cessation of physical movement.

MIND being an organisation led by persons with Muscular Dystrophy and Spinal Muscular Atrophy can be seen more like a family standing together fighting and setting a model for everyone in the society, clearly saying, Impossible is I’m possible. MIND aims to make an inclusive society where a person with a disability can lead a normal life without being seen as an alien.

WHAT WE DO

Awareness

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Spreading scientific knowledge of MD/SMA conditions and promote inclusive society for persons with disabilities.

Education

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Promoting accessible education for children with MD/ SMA conditions and training the adults for equivalency examinations.

Livelihood

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Equip every person with Muscular Dystrophy/Spinal Muscular Atrophy for employment and opportunities.

Rehabilitation

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Planning to envisage Oridam, inclusive rehabilitation space for personas with MD/SMA by 2025

Snehasammanam

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providing financial assistance to beneficiaries of the trust as pension and in time of health emergencies.

Research

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Oridam promoting research led activities for evidence based activities and advocacy.

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Account Name: Mobility In Dystrophy Trust
A/C Number: 611102010008103
Bank: Union Bank of India.
Branch: Koyilandy Branch
IFSC Code: UBINO561118

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Our Stories

Krishna kumar KK
Krishna kumar KK

Krishna Kumar KK A well determined and focused IT professional, born as the second son to Mr. Krishna Namboothiri and Mrs. Indira. K. Namboothiri, in Vakathanam, Kottayam district. He is famously known as KK among his friends and family, is a Becker Muscular Dystrophy (BMD) patient. His favorite subject was mathematics in school, for graduation […]

Sakeer Hussain PB
Sakeer Hussain PB

Sakeer Hussain PB A successful person with muscular dystrophy, who holds the position of Vice-Chairman of MinD. It was while studying for his degree that he was diagnosed with this disease. He is a well-known teacher, now runs an educational institution named Phoenix Academy of his own. He also has proved his potential in the […]

Krishna Kumar
Krishna Kumar

Krishna Kumar P S Krishna Kumar is the Vice-Chairman of MinD (Mobility in Dystrophy) Trust, which is a coalition of muscular dystrophy patients, work for the upliftment of differently abled persons. He was diagnosed with a genetic disease Spinal Muscular Atrophy Type2 when he was six months old. He experienced the gradual impairment of muscular […]

Veena Venugopal
Veena Venugopal

Veena Venugopal The first wheelchair TV anchor in India.It all started with the promotion of the movie Aalkoottathil Thaniye, anchored in a wheelchair. Then it came to the program of some online channels. But as the effort dragged on, Goodness TV realized its dream of becoming a wheelchair television anchor by presenting a program. She […]

Joyal K Biju
Joyal K Biju

Joyal K Biju Joyal K Biju, 16, has won hearts with his determination to overcome disability with talent. He is the youngest mouth painting artist in the country, according to the Association of Mouth and Foot Painting Artists, of which he become a member in 2020.He said that “He want to be known as a […]

Akhil N
Akhil N

Akhil N His name, which survived through painting, shines in the Guinness Book of World Records today. Akhil was born to Nelliyani Nelsan and Mary at Ambalavayal He is 25 years old. At the age of 15, he contracted a rare disease called Muscular Dystrophy. He drew pictures in the dim light inside the darkened […]

Sunitha Thrippanikkara
Sunitha Thrippanikkara

Sunitha Thrippanikkara radiates positivity and energy, She never let her disability come in her way to success.She is one of the most eminent mouth painting artist in the country, and also shines in the Guinness Book of World Records 2021.Sunitha born in 1983 in Kannur is a muscular dystrophy sufferer. […]

Ganesh Kumar
Ganesh Kumar

Through his art, Ganesh Kumar spreads positivity and happiness to the World, and is also an Enthusiastic Artist who paints with his mouth. Through his painting he shines in the Guinness Book of World Records 2021.He was born in 1969 in Kannur, At the age of one, he was diagnosed with Muscular Dystrophy. Despite his disability, Ganesh started writing and painting early from the age of three, Gradually Ganesh lost complete control of his hands and feet, and started to use a wheelchair. Slowly he learnt to use his mouth to write and paint.[…]

M.V Sathi
M. V Sathi

The life of M.V Sathi is the inspirational story of the struggle. Sathi, hails from the Kasaragod district, is a fighter for Spinal muscular atrophy, a genetically incurable disease. She could not even complete her basic education. But, it never broke her spirit or dissuaded her from anything. She could overcome all her limitations by her reading habit. Let’s go through the life of this well-known writer, who rewrites her destiny with a pen.

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Mobility in Dystrophy (MIND) Trust was formed in 2017, by us patients suffering from Muscular Dystrophy (MD) & Spinal Muscular Atrophy (SMA). In 2016, we started off as a small Whatsapp group of patients reaching out to each other. 

Contact

Reg. No: 132/2017
Building No: IV/162, Pichathara house Puthiyakavu, Mathilakam post Thrissur, Kerala, Pin 680 685

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