UNARV
Project UNARV, an initiative of MIND works to attain MIND’s objective of creating awareness about Muscular Dystrophy and Spinal Muscular Atrophy among the general public and between persons with Muscular dystrophy and Spinal Muscular Atrophy. The program aims to help its beneficiaries from fraudulent, bogus therapies, unnecessary drugs, and thereby unwanted consequences by providing accurate information. Activities of the program have spread all over Kerala with the support of medical practitioners and knowledge experts in the coming years.
Activities under UNARV include:
- Webinars were conducted to create awareness of Spinal Muscular Atrophy (SMA) and Muscular Dystrophy (MD). Webinar on Spinal Muscular Atrophy (SMA): Available medicines and expected results was conductedon 20th August 2022 with Dr. Smilu Mohanlal as speaker.
- YouTube videos and YouTube shorts called UNARV shots on types of Muscular dystrophy and Spinal Muscular Atrophy
- Organized a panel discussion on the Empowerment of PwD (Persons with Disability) through Advocacy in collaboration with CRC Kozhikode on 15thSeptember 2021
- Conducted Awareness sessions in various colleges in Kerala handled by MIND executive members project and coordinators
- More than 150 online sessions and seven offline sessions were conducted in association with Project Oridam with help of Koottu, volunteer wing of MIND
You can give your valuable contributions here
Mobility in Dystrophy (MIND) Trust was formed in 2017, by us patients suffering from Muscular Dystrophy (MD) & Spinal Muscular Atrophy (SMA). In 2016, we started off as a small Whatsapp group of patients reaching out to each other.
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Contact
Reg. No: 132/2017
Building No: IV/162, Pichathara house Puthiyakavu, Mathilakam post Thrissur, Kerala, Pin 680 685
Building No: IV/162, Pichathara house Puthiyakavu, Mathilakam post Thrissur, Kerala, Pin 680 685
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