Pratidi
Pratidi
The Sanskrit word “pratidi” means “hope”. As the name suggests, the MIND does some of the things that are needed to give hope to those who are going through such conditions in life. Treatment, physiotherapy, and assistive devices needed to alleviate the physical discomfort of the sick person, as well as replacement of homes and public spaces at low cost in a disability-friendly manner. MIND helps in changing the vehicles for the disabled, how useful we can be with the help of artificial intelligence, employment and education in the category of PRATIDI . As mentioned earlier, the number of such patients is increasing day by day. The MIND authorities have repeatedly contacted the Central and State Governments and the people’s representatives to set up the centers, both directly and indirectly. However, they have often received a cold response from them.
Since muscular dystrophy and atrophy are genetic diseases, the only solutions are changes in the DNA or gene editing and gene therapy to correct the faulty DNA. The combination of state – of – the – art lab and equipment to make it, combined with the long delay required for testing, can make the drug very expensive. In short, medicine is too high for ordinary people to dream of.This is the significance of the idea put forward by the respondent. If we could have manufactured such drugs in India completely, we would not have had to pay crores of rupees for the drug. In addition to the price, tax may charge extra .If it had been manufactured here completely, there would have been no such tax in India.All the companies that approached the government in connection with the manufacture of the drug were faced with the situation of being rejected due to lack of funds.But MIND believes that this is also possible when you think of the ten millions of such patients. MIND wants the government to take immediate action to provide free or low – cost genetic testing at district hospitals and medical colleges.Thus accurate diagnosis is made and patient information is communicated to the pharmaceutical companies and the government with a collective effort to start a research lab in India, that’s a dream of MIND’s PRATIDI. MIND tried to be a part of the some DMD clinical trials..and, as mentioned earlier, MIND conducted a free genetic test campaign in collaboration with Delhi AIIMS for those who could not do the genetic test.Some people sent blood samples in it.Unfortunately, the wave of Covid -19increased and the result did not come.However, within the next one year, the genetic test of all MIND members will be targeted.
The physical and mental suffering of a person going through a state of illness is immense.The thought of being dragged to death by hell hurts them even more. If the increase in the number of patients exceeds a certain level, rehabilitation will also be impossible. The only way is to make medicines available to them to reduce the severity of the disease.