Founders note

Mahesh Kumar

Sakeer Hussain

Prajith Poonkavanam

Krishna Kumar KK

Asha Mary Tharian

Munshabi

 Mobility in Dystrophy or Mind was a WhatsApp community formed on July 1, 2016, by four people suffering from muscular dystrophy in Kerala

 People with Muscular Dystrophy (MD) and Spinal Muscular Atrophy (SMA) were gradually being added to the group. The mental, physical and financial problems experienced by the members were constantly discussed and through such discussions, the need to form an organization and bring the challenges of those with these condition to the attention of the government and society were recognized. It was difficult to meet one another from the group as most of the members were constrained within the four walls of their room. However, a strong desire to meet everyone led us to organize a gathering called ‘Snehasangamam’, through which, we identified that the solution to our problems were activities that focus on the five objectives which later became our goals. They are Awareness, Education, Employment, Rehabilitation and Research. Afterwards, it was decided to transform the group from a WhatsApp community to an organization and a committee was formed later. The committee proceeded with the registration process of the organization and thus opened an office at Kalettumkara, Thrissur. Registered as a Trust under the name “Mobility in Dystrophy (MIND) Trust” Register No. 132/2017 at Kallettumkara, Irinjalakuda, Thrissur Sub-Registrar’s Office. Later on, the MIND Trust office was shifted to Mathilakam, Thrissur.

The activities of the Mind were initiated with the primary objective of creating awareness.

Those who had dropped out of school due to illness were identified and given the necessary assistance and other skill training sessions to not only resume their education but also

provide them with a skillset that would aid them in making ends meet. Some of them started by making paper pens with the aim of earning an income of their own to support their family. Attempts were made to reach out to the community through various media outlets about “Oridam”, Mind’s rehabilitation project that achieves all the goals of MIND Trust. Today, “Oridam” has become the dream of everyone and we are one step closer to realizing our dream as we have acquired the land for “Oridam”.

Mind’s activities based on 5 goals has currently progressed to 18 projects.

Mind has, to some extent, been able to convey the severity of these conditions to the society, as well as to the government, whom were unaware of conditions such as Muscular Dystrophy and Spinal Muscular Atrophy.

People who were deeply frustrated and anxious about their illness are now comforted as they are included under the umbrella of Mind and are reminded that they are not alone. 7 years ago, in 2017, around sixty-five MD and SMA patients initiated this organization and now, MIND has more than 700 members. New members are being added.

It was with the support of a lot of Samaritans, that helped us to overcome the struggles and to move forward and without a doubt we are still moving forward with full confidence that we will achieve our dream “Oridam, a place of Love, Hope and Care”.

MinD

Mobility in Dystrophy (MIND) Trust was formed in 2017, by us patients suffering from Muscular Dystrophy (MD) & Spinal Muscular Atrophy (SMA). In 2016, we started off as a small Whatsapp group of patients reaching out to each other. 

Contact

Reg. No: 132/2017
Building No: IV/162, Pichathara house Puthiyakavu, Mathilakam post Thrissur, Kerala, Pin 680 685

Support

With enthusiastic employees and volunteers, we are ready to support you no matter any time.

© Copyright 2021 by mindtrust